Examinando por Materia "Family caregiver"

Mostrando 1 - 4 de 4
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    Experiencias de cuidado en cuidadores familiares de menores de 15 años con discapacidad visual
    (2022) Naranjo Paz, Juan Camilo; Ruiz Pérez, Andrea Estefanía; Orozco Valeta, Martha Epifania;
    Descriptive, qualitative study, aimed at exploring the experiences of caregivers of children under 15 years with visual disabilities in the municipality of Montería, focused on the caregiver's work, based on the adaptation model of Callista Roy. Through snowball sampling, the experience of family caregivers of children with visual disabilities was explored, relatives who have an age range between 25 and 49 years, mostly female and who work as housekeepers, who have 1 or more visually impaired children, these experiences were exposed during an interview, which due to the Covid-19 pandemic mutated in relation to the face-to-face experience of it, thereby favoring comfort and protection of the health of the participants. It was possible to conclude that the main caregivers are the mothers, who are in charge of the responsibility of caring for the minor with disabilities, which is greater compared to those children who do not have this condition, which leads to physical and emotional exhaustion, secondary to care and the economic effects that it entails, finding support in their faith, however, it is necessary to strengthen the support network of caregivers, in order to avoid negative consequences in their lives.
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    Percepción de calidad de vida de los cuidadores de pacientes con Enfermedad de Huntington
    (2023-01-27) Juan Carlos, Liñan Castillo; Auri Cristina, Quinceno Espitia; Puello Alcocer, Elsy Cecilia
    Los cuidadores familiares no cuentan con herramientas psicosociales para ofrecer un cuidado integral a sus familiares con enfermedad de Huntington (EH); un padecimiento incapacitante de gran impacto en la calidad de vida de quienes la sufren y de aquellos que los cuidan. El objetivo de la investigación fue explorar la percepción construida por cuidadores de pacientes con EH en algunos municipios de la costa Caribe colombiana, sobre la calidad de vida, a partir de las dimensiones físicas, psicológicas y sociales. Se utilizó una metodología cualitativa con enfoque narrativo biográfico, se realizaron entrevistas semiestructuradas, a 10 cuidadoras, bajo los parámetros del modelo Calidad de Vida Relacionada con la Salud (CVRS) de Schwartzmann, que asume la calidad de vida desde una postura multidimensional, con interacción de factores internos y externos que buscan ofrecer elementos conceptuales para una mayor comprensión sobre los factores psicosociales determinantes de la calidad de vida relacionada con la salud. En los resultados se identificaron 3 categorías las cuales evidencian las condiciones de pobreza en que viven, las necesidades básicas insatisfechas, la particularidad y forma como sienten y perciben su realidad, entre los puntos convergentes de los cuidadores, generados por la rareza de la EH, está la búsqueda de conocimiento para brindar cuidados de forma adecuada. Las cuidadoras presentaron deterioro en la calidad de vida relacionada con la salud: experimentaron cambios a nivel biopsicosocial y descuido de sí mismas, padeciendo alteraciones físicas, psicológicos y sociales, dieron a conocer todos los sentimientos emergentes en estos cuidadores como son la profunda tristeza e incertidumbre, de donde brota la fe como mecanismo de afrontamiento, denotando resiliencia y esperanza en estos cuidadores familiares informales. Este estudio permitió conocer a partir de lo que sienten, expresan y hacen en su contexto sociocultural, la grave problemática social, física, psicológica y económica que viven los cuidadores.
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    PublicaciónAcceso abierto
    Percepción de calidad de vida de los cuidadores de pacientes con enfermedad de Huntington
    (2023-02-09) Liñan Castillo, Juan Carlos; Quiceno Espitia, Auri Cistina; Puello Alcocer, Elsy Cecilia; Valencia Jiménez, Nydia Ninna
    Family caregivers do not have the psychosocial tools to offer comprehensive care to their family members with Huntington's disease (EH); a disabling condition with a great impact on the quality of life of those who suffer from it and those who care for them. The objective of the research was to explore the perception built by the caregivers of patients with EH in some municipalities of the Colombian Caribbean coast, on the quality of life, from the physical, psychological and social dimensions. A qualitative methodology with a narrative biographical approach was used, semistructured interviews were conducted with 10 caregivers, under the parameters of the Schwartzmann Health-Related Quality of Life (HRQL) model, which assumes quality of life from a multidimensional and continuous position. Movement, with interaction of internal and external factors that seek to offer conceptual elements for a greater understanding of the psychosocial determinants of health-related quality of life. In the results, 3 categories were identified that show the conditions of poverty in which they live, the unsatisfied basic needs, the particularity, and the way in which they feel and perceive their reality, among the points of convergence of the caregivers, generated by the rarity of the EH., there is the search for knowledge to provide adequate care. The caregivers presented deterioration in the quality of life related to health: they experienced changes at the biopsychosocial level and neglect of themselves, suffering physical, psychological and social alterations, they made known all the emerging feelings in these caregivers such as deep sadness and uncertainty, from where faith springs as a coping mechanism, denoting resilience and hope in these informal family caregivers. This study allowed to know from what they feel, express and do in their sociocultural context, the serious social, physical, psychological and economic problems that caregivers experience.
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    PublicaciónAcceso abierto
    Sobrecarga de cuidadores familiares de personas con enfermedad mental: una revisión integradora de la literatura 2015 - 2020
    (2021-07-10) Ossa Rivera, Diana Marcela De La; Saez Mercado, Ana María; Ripoll García, Luz Dary
    Mental health is a fundamental part of the well-being of the human being, hence the importance of identifying and intervening in a timely manner the conditions of this, due to the indescribable suffering that it generates in patients, caregivers and relatives. People with mental illness need a family caregiver by their side, who, being totally dedicated to this work, presents different changes in their life, which in the long run ends up affecting their physical and mental health, generating in them a certain degree of overload. The objective of this work is to describe the scientific evidence related to the burden of family caregivers of people with mental illness; What studies and evidence are there in this regard, in order to create strategies from the nursing field that contribute to reducing this overload? In this review, 33 articles selected from the research inclusion criteria were explored. The results revealed that the family caregiver is affected in different aspects of his life such as: emotional, spiritual, physical and economic. Caregivers experience feelings of uncertainty, loneliness, depression, anxiety, stress, fear and fear, they are also physically affected; presenting tiredness, fatigue, lumbar injuries, joint muscle pain, its economy is also altered, since dedication to the patient prevents him from continuing with his work and the patient's expenses increase as time passes and the pathology worsens, finally affecting the quality of life, of the caregiver, who puts aside his life project, his dreams, to be at the service of his family member. This situation is aggravated because the burden of care is usually left on a single person, so it is necessary and essential to educate the caregiver and family about the disease, about the importance of sharing responsibility for care, crisis management and constant monitoring. Of the IPS to avoid overloads.